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PROFILE Bootcamp in Entrepreneurial Innovation in Orphan Diseases, October 23-25, 2017, Leuven, Belgium.
Breaking innovations in rare diseases are at the centre of this PROFILE Bootcamp, which brings together junior & senior researchers, clinicians, pharmaceutical industry and policymakers.
Read moreChairs and Members
Chair (re-appointment, 2023–2026)Josef Vormoor—Professor of Hematological Malignancies in Children, University Medical Center Utrecht (The Netherlands)
Co-chair (re-appointment, 2023–2026)Maria Ester Bernardo—Clinical Coordinator, Clinical Research Unit, San Raffaele Telethon Institute for Gene Therapy (Italy)
SWG Steering Committee members (2024–2027 term)
SWG Secretary—Francesco Saglio, AOU Città…
Annual reports
EHA Annual Report 2023You can access an interactive version of our most recent annual report using the link below. Read the EHA Annual Report 2023
Previous annual reportsYou can read annual reports from previous years as PDFs.
Publications
Experience With IVDR Implementation in Three Diagnostic Laboratories: Messages to EU Health Institutions, Diagnostic Healthcare Payers, and Authorities
Lubbers BR, Dombrink I, Kalina T, Hofmans M, Bruun MS, Stanworth SJ, Béné MC, Döhner K, Brüggemann M, Macintyre E, van Dongen JJM.…
Overview of EHA's Hemoglobinopathies Initiatives
The EHA Topics-in-Focus Hemoglobinopathies Program (focus on Sickle Cell Disease) aims to expand awareness and education about these increasingly common genetic diseases in Europe, among healthcare professionals, patients and the general population.
Read moreChairs and Members
ChairPaolo Gresele, Department of Medicine, Section of Internal and Cardiovascular Medicine, University of Perugia, Perugia (Italy)
Vice-ChairTo be announced.
Meeting program
October 11, 2023 at 3 pm CET The interaction of von Willebrand factor (VWF) with platelet glycoprotein Ib: pathological implications and clinical manifestations
15:00-15:10 Introduction Giancarlo Castaman, Paolo Gresele …
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