Health Data

EHA Health Data Strategic Goals:

Goal 1: Need for sustainable, representative, high-quality data structures and data sources to facilitate research and education and allow timely regulatory and improved clinical decision making

Goal 2: Transparent, inclusive and ethical use of novel analytical tooling for evidence generation

Goal 3: Promotion of FAIR data principles (Findability, Accessibility, Interoperability, and Reuse)

Goal 4: Implementation of Personalized Medicine

Goal 5: Harmonization of real-world data (RWD)

Goal 6: Align with, link into and influence, where possible, strategic European initiatives on health data

Goal 7: Empowerment of patients in data generation, sharing, analysis and ownership

Goal 8: Support for existing, centralized data repositories of strategic importance to EHA/hematology for long-term sustainability.

EHDS Resources