Creating a better world requires teamwork, partnerships, and collaboration.
HARMONY (Healthcare Alliance for Resourceful Medicines Offensive against Neoplasms in Hematology) is a European Network of Excellence for big data in hematology. HARMONY captures, integrates, analyzes and seeks to harmonize Big Data on various hematological malignancies (HMs). Integrating disease information in a single big data platform will improve understanding of HMs and the quality of patient care. HARMONY is funded through the Innovative Medicines Initiative (IMI), Europe's largest public-private initiative aiming to speed up the development of better and safer medicines for patients. EHA is one of the 52 partners.
European Reference Networks (ERNs), an initiative of the European Commission, aim to improve the quality, safety of, and access to, treatments of complex or rare diseases by pooling knowledge and resources. Launched in early 2017, EuroBloodNet (European Reference Network for rare hematological diseases) results from joint efforts of the EHA and the European Network for Rare Congenital Anemias (ENERCA). The network brings together 66 highly specialized hospital centers with expertise on malignant and non-malignant rare hematological diseases. As in other ERNs, significant patient involvement is a key feature of EuroBloodNet.
PROFILE Innovative Training Network
EHA is a partner in the PROFILE project, an EU (Horizon 2020) funded 'Innovative Training Network' geared towards the stratification of patients with the rare autoimmune disorder Thrombotic Thrombocytopenic Purpura (TTP). Stratifying acquired TTP patients by understanding disease pathology, using new types of biomarkers, and predicting their risk for relapse will be crucial for treatment adjustment in these patients and development of personalized medicine in the future. The joint doctoral training (European Industrial Doctorate) provided by the academic and corporate partners in PROFILE allows PhD students to develop skills inside and outside academia that respond to public and private sector needs.