SWG Educational Activities
Past EHA (HOPE) Asia 2021 meeting 10-11 September 2021, Virutal
Speakers
Laane - Systematic review of literature on multiple myeloma EHA evidence-based “Guidelines for the use of patient-reported outcomes in adult patients with hematological malignancies” in progress - Systematic review of literature on multiple myeloma”
Past EHA (HOPE) Latin America 2021 meeting 8-9 October 2021, Virutal
Speakers
Laane - EHA evidence-based “Guidelines for the use of patient-reported outcomes in adult patients with hematological malignancies” in progress”
EAFO Hematology Forum-2022. 7-9 January 2022, Moscow, hybrid.
Andrey NOVIK Quality of Life Memorial Symposium was organized by EHA SWG.
Chair: Tatyana Ionova
The goal of Symposuim - promotion of PRO research and implementation in routine clinical practice in hematology
Speakers
- Salek - Results of Using Digital PRO Tools for Patients with Hematological Malignancies
- N. Oliva - Guidelines for the Use of Patient-Reported Outcomes in Adult Patients with Hematological Malignancies
Audience - hematologists, PRO researchers. More than 200 participants.
Clinical trials promoted by or involving the SWG
- Efficacy and Safety of Luspatercept for the Treatment of Anemia Due to Myelodysplastic Syndromes with del5q refractory/resistant/intolerant to Prior Treatments, Who Require Red Blood Cell Transfusion (QOL-ONE Phoenix) trial
- Collaborations on international projects promoted by or involving the SWG
- The Acute Leukemia Advocates Network (ALAN) sought to determine which factors are most associated with poor quality of life in patients with acute leukemia and to determine key issues and unmet needs through the administration of an online survey distributed worldwide via partner patient organizations.
Translational work promoted by or involving the SWG
- HM-PRO validation and implementation
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