Publications
The Reporting, Use, and Validity of Patient-Reported Outcomes in Multiple Myeloma in Clinical Trials: A Systematic Literature Review
Salek, S.; Ionova, T.; Oliva, E.N.; Andreas, M.; Skoetz, N.; Kreuzberger, N.; Laane, E.
Cancers 2022, 14, 6007.
Understanding Quality of Life in Patients With Acute Leukemia, a Global Survey
Pemberton-Whiteley Z, Nier S, Geissler J, Wintrich S, Verhoeven B, Christensen RO, Salek S, Oliva EN, Ionova T, Bradley J.
J Patient Cent Res Rev. 2023 Jan 17;10(1):21-30. PMID: 36714002; PMCID: PMC9851391.
EHA Guidelines for the Use and Reporting of Patient-Reported Outcomes in Multiple Myeloma Clinical Trials
Laane E, Salek S, Oliva EN, Bennink C, Clavreul S, Richardson PG, Scheid C, Weisel K, Ionova T; European Hematology Association Specialized Working Group on Quality of Life and Symptoms.
Cancers (Basel). 2023 Dec 8;15(24):5764. PMID: 38136310; PMCID: PMC10741926.
Patient-reported outcomes in Hodgkin lymphoma trials: a systematic review
Oliva EN, Ionova T, Laane E, Csenar M, Schroer J, Behringer K, Monsef I, Oeser A, Skoetz N, Salek S.
Front Oncol. 2024 Mar 13;14:1353101.
Impact of leukemia subtype and demographics on patient quality of life in 76 countries: a cross-sectional study
Salek Sam, Nier Samantha, Pemberton-Whiteley Zack, Ionova Tatyana, Ianni Giuseppe, Tripepi Giovanni, York Nick, Schroeter Nicole, Huntley Kathryn, Rynne Michael, Costello Denis, Pecova Lidija, Oliva Esther Natalie.
Frontiers in Hematology. 2024. Vol. 3.
Translation, cultural adaptation and validation of the Danish version of the haematological malignancy patient-reported outcome measure (HM-PRO)
Salek S, Möller S, Abildgaard N, Rosenberg T, Larsen MT, Asdahl P, Pedersen KK, Lassen MT, Andersen CL, Nielsen LK.
J Patient Rep Outcomes. 2025 Apr 29;9(1):43.
Disease and treatment burden in patients with leukaemia: family members/partner perspective
Oliva EN, Ionova T, Nier S, Pemberton-Whiteley Z, York N, Costello D, Salek S.
Front. Hematol. 2025;4:1570055. doi: 10.3389/frhem.2025.1570055.
Unmet Needs and Their Impact on Quality of Life and Symptoms in Myelodysplastic Neoplasm Patients and Caregivers
Crisà E, Cilloni D, Riva M, Balleari E, Barraco D, Manghisi B, Borin L, Calmasini M, Calvisi A, Capodanno I, Della Porta MG, Diral E, Fattizzo B, Fenu S, Paolini S, Finelli C, Fozza C, Frairia C, Giai V, Turrini M, Isoni MA, Itri F, Maurillo L, Molteni A, Palumbo GA, Pelizzari AM, Pilo F, Poloni A, Bosi C, Sanpaolo G, Sancetta R, Amato C, Santini V, Voso MT, Salek S, Ionova T, Nosari A, Oliva EN.
Cancers (Basel). 2025 May 7;17(9):1587.
Use and reporting of patient-reported outcomes in randomized controlled trials in non-Hodgkin lymphoma: a scoping review
Schroer J, Bröckelmann PJ, Salek S, Ionova T, Laane E, Oliva EN, Monsef I, Skoetz N, Csenar M.
J Patient Rep Outcomes. 2026 Jan 28;10(1):31. doi: 10.1186/s41687-026-00999-1. PMID: 41606262; PMCID: PMC12923682.