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Overview of EHA's Hemoglobinopathies Initiatives

The EHA Topics-in-Focus Hemoglobinopathies Program  (focus on Sickle Cell Disease) aims to expandawareness and education about these increasingly common genetic diseases in Europe, among healthcare professionals, patients and the general population. The Program addresses medical and public health issues in the prevention, early diagnosis and management of hemoglobinopathies.

EHA Campus: EHA Thalassemia Program Fundamentals of Thalassemia Thalassemia Morbidities and their Management Fertility, Pregnancy, and Quality of Life in Thalassemia Patients Treatment of Thalassemia Beyond Transfusion and Iron Chelation EHA Sickle Cell Disease Program Pathophysiology of Sickle Cell Disease - Section 1: In the Cell Pathophysiology of Sickle Cell Disease - Section 2: From the Cell to the Vessel Pathophysiology of Sickle Cell Disease - Section 3: In the Tissue Epidemiology and Public Health Impact of Sickle Cell Disease Sickle Cell Disease Screening and Diagnosis Sickle Cell Disease Complications Sickle Cell Disease Treatment Other courses: Thalassemia: Follow the Iron EHA Unplugged - Sickle Cell Disease SCD: What Physicians Can Learn From Patients And Carriers

Scientific Working Groups: Red Cells and Iron Research grants: Topics-in-Focus Research Grants

Publications for stakeholders EHA Position Paper: Access to Affordable Orphan Medicines in Europe EHA Research Roadmap on Hemoglobinopathies and Thalassemia: An Update European Reference Network  ERN-EuroBlood Net Patient Organizations Thalassaemia International Federation (TIF) European Organisation for Rare Diseases (EURORDIS)

Past Meetings & Events: 1st EHA European Sickle Cell Conference Annual Scientific Conference on Sickle Cell and Thalassemia (ASCAT)