Scientific and educational activities

Meetings

TTP-IWG Workshop by the TTP International Working Group (TTP-IWG) at EHA2025 Annual Meeting

Date and location: 11 June 2025, Milan

Agenda:

  • Caplacizumab 1000 (Discussion of data & implications to iTTP patients clinical care Opportunities for collaboration moving forward in the IWG Dataset dissemination to investigators for future study
  • Future TTP Care Without PEX (Caplacizumab alone for the treatment of acute iTTP rADAMTS13 alone for the treatment of iTTP Treatment optimization of acute iTTP w/o plasma exchange (PEX))
  • cTTP: What’s Optimal Care in 5 years (Clinical concerns & cTTP: optimal therapy for today & the future ISTH Guideline Updates: Public comments on updates)
  • Two Case Presentations by Junior Doctors (Two junior cases presented for discussion)

SWG Session at the EHA Congress 2025

Date and location: 12 June 2025, Milan

Session title: Inherited platelet disorders: An update

Chair: Paolo Gresele (Italy)

Speakers:

  • Carlo Zaninetti (Germany) – How to suspect inherited platelet disorders
  • Kathleen Freson (Belgium) – Genetic screening of pathogenic variants in inherited platelet disorders: where are we?
  • Hana Raslova (France) – The use of induced pluripotent stem cells for the study of inherited platelet disorders

Good attendance (around 200 participants); good feedback from speakers

EHA-SAH Hematology Tutorial 2025

Date and location: 7-8 November 2025, Mar Del Plata, Argentina

The EHA-SAH Hematology tutorial program is designed to help attendees better understand the diagnosis and treatment of myeloproliferative disorders. The program consists of international speakers and patient-based case examples from the region. The knowledge gained by attendees is then tested by the international speakers as well.

Agenda:

  • Cytopenias / Anemias (Hemolytics Anemia)
  • Disorders of Iron Metabolism
  • Thrombocytopenia
  • Platelets
  • Hemophilia
  • Bleeding Disorders

Other scientific activities

  • “International Survey on Gastrointestinal bleeding in patients with Glanzmann Thrombasthenia”, jointly promoted by the ISTH and EHA (2024-2026)
  • “Updated Guidance on the diagnosis of Inherited Platelet Function Disorders (IPFDs)”, jointly initiative between EHA and ISTH (2025-2027)
  • EHA Innovation Grants 2026, Joint project: “Megakaryocyte FcγRIIA as a player in immune thrombocytopenia (ITP): effect of anti-glycoprotein autoantibodies and T-cell immune-profiling on thrombopoiesis – PI: Prof. Loredana Bury (submitted)
  • European Rare Disease Research Alliance: Project RECODE-GT “Resolving genotype-specific mechanisms of gastrointestinal angiodysplasia in Glanzmann thrombasthenia”– PI: Prof. Loredana Bury (submitted)
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