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Patient Advocacy Committee
Current committee members
Derek Elston, United Kingdom (Chair)
Samantha Nier, Switzerland (Vice-chair)
Loris Brunetta, Italy (Vice-chair)
Members representing a Patient Advocacy Organization
Organization
Member
Acute Leukaemia Advocates Network (ALAN)
Samantha Nier
CCI Europe
Anita Kienesberger
CLL Advocates Network (CLLAN)
Pierre Aumont
CML Advocates Network
Jan Geissler
European Federation of Associations of Patients with Haemochromatosis (EFAPH)
Dag…
Highlights from the SWG
Participation in EHA and ASH congresses. Planning of new common trials. Conduct of annual EMSCO meeting in Nice in October 2023.
Read moreIn Memoriam Pieter Van Vlierberghe
We are deeply saddened to announce that Pieter Van Vlierberghe (42) has passed away.
EHA undersigns Manifesto on Treatment Optimization
EHA has given its formal endorsement to the “Manifesto for a new approach for better medicine in Europe: Establishing Treatment Optimization as part of personalized medicine development”.
Read moreSplenic marginal zone lymphoma study update, February 2024
A project update from Dr Ahmed Ludvigsen Al-Mashhadi. I am truly grateful for this opportunity provided by EHA, and for EHA's effort in advancing research in a field that may otherwise be very difficult to explore.
Read moreTutorial on thalassemia focused on best treatment
Almost 90 delegates from Shiraz and other cities in Iran learned how to identify the best treatment for each thalassemia patient at the EHA-SHRC Hematology Tutorial on Thalassemia on May 10-11, 2018 in Shiraz, Iran.
Read moreSWG Educational Activities
Past EHA (HOPE) Asia 2021 meeting 10-11 September 2021, Virutal
Speakers
Laane - Systematic review of literature on multiple myeloma EHA evidence-based “Guidelines for the use of patient-reported outcomes in adult patients with hematological malignancies” in progress - Systematic review of literature…
Major changes needed for patients to benefit from precision medicine
Precision medicine approaches the treatment of a disease via an individual’s genes, environment, and lifestyle.
Read moreSWG Educational Activities
The SWG's recent educational activities have included:
Meetings with the SWG on Myelodysplastic Syndromes and the SWG on Acute Myeloid Leukemia
An EHA-SWG Scientific Meeting on 'MDS/MPN/AML: Commonalities and Differences of Myeloid Neoplasms'
An oral presentation for the American Society of Hematology (ASH)…
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