Patient organizations are important partners for EHA and we are delighted to collaborate with them in several areas. For a number of years patient organizations have organized a Patient Advocacy Session at EHA Annual Congress. In addition, EHA and patient organizations work together to advocate issues of common interest, such as personalized medicine or the regulations for clinical trials.
Twice a year, EHA is honored to invite patient organizations to meet and discuss current issues of common concern, to exchange information, and to develop joint projects. The patient organizations, with which EHA collaborates, are listed below. These organizations are European or international in scope. They are often umbrella organizations of national or disease-specific patient organizations. All of them represent patients with hematological diseases.
If you, or a loved one, suffer from a hematological disorder, then please contact the relevant patient organization below.
Patient organizations collaborating with EHA:
Acute Leukaemia Advocates Network (ALAN)
Chronic Lymphocytic Leukemia
CLL Advocates Network (CLLAN)
Chronic Myeloid Leukemia
CML Advocates Network
European Haemophilia Consortium (EHC)
European Organisation for Rare Diseases (EURORDIS)
Immune Thrombocytopenia (formerly known as Idiopathic Thrombocytopenic Purpura ITP)
ITP Support Association
Lymphoma Coalition (LC)
MPN Advocates Network (MPN AN)
International MDS Alliance
Thalassaemia International Federation (TIF)
European Waldenströms Macroglobulinemia network (EWMnetwork)
European/international umbrella organizations, representing primarily patients with hematological diseases who are interested in collaborating with EHA, are welcome to contact us (firstname.lastname@example.org). Please provide the following information: name of the organization, name of its representative/contact person, website address, scope and size of the organization.