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New data exchange platform on rare diseases

The European Commission (EC) launched a new online knowledge-sharing platform – the European Platform on Rare Disease Registration (EU RD Platform) – on February 28, 2019.

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Chairs and Members

Chair:

Prof Arnon Kater (2021-2024)
Amsterdam University Medical Centers, University of Amsterdam
The Netherlands

Co-chair:

Prof Dr Sarka Pospisilova (2021-2024)
Masaryk Univerzity and Univerzity Hospital Brno
Czech Republic

SWG Executive Board members:

Carol Moreno (Hospital Sant Pau, Barcelona, Spain)

Richard Rosenquist (Karolinska Institute, Stockholm, Sweden)

Andy Rawstron (HMDS, Leeds, UK)

Yair Herishanu…

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