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Clinical WG
Responsibilities:
Identifying the clinical data required for collection. Locating clinical trials where suitable samples will be collected or have already been collected. Involvement in the European Registry. Assessing the type of database and dataset currently available.
Chairs and Members
Chair
Claire Harrison, Guy’s and St Thomas’ NHS Foundation Trust, Guy’s Hospital, London (United Kingdom)
Co-chair
Jean-Jacques Kiladjian, Hôpital Saint-Louis and Paris Diderot University, Paris (France)
SWG Steering Committee members
Alessandro Vannucchi, University of Florence (Italy)
Antonio Almeida, Hospital da Luz (Portugal)
Carlos Besses, Barcelona Biomedical Research…
Gaucher disease non-interventional clinical audit study
An activity of the GD Task Force, an independent sub-committee of the SWG on Granulocytes and Constitutional Marrow Failure Syndromes.
Read moreChairs and members
ChairAli Taher, American University of Beirut Medical Center (Lebanon)
Co-chairAchille Iolascon, University of Naples Federico II (Italy)
SWG Steering Committee members
Patricia Aguilar Martinez, Henri Mondor University Hospital (France)
Maria Domenica Cappellini, University of Milan (Italy)
Marta Morado, Hospital Universitario La Paz (Spain)
Martina Muckenthaler, University…
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