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Patient Advocacy Committee
Current committee members
Derek Elston, United Kingdom (Chair)
Samantha Nier, Switzerland (Vice-chair)
Loris Brunetta, Italy (Vice-chair)
Members representing a Patient Advocacy Organization
Organization
Member
Acute Leukaemia Advocates Network (ALAN)
Samantha Nier
CCI Europe
Anita Kienesberger
CLL Advocates Network (CLLAN)
Pierre Aumont
CML Advocates Network
Jan Geissler
European Federation of Associations of Patients with Haemochromatosis (EFAPH)
Dag…
Tackling Sickle Cell Disease: the need for a European approach
Elvie Ingoli, president of the German association of SCD and thalassemia patients, at the 7th EAPM Presidency Conference in Brussels. Sickle Cell Disease (SCD) is relatively new to many parts of Europe.
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