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Without access to treatment, can we truly innovate in rare diseases?
Interview with Giampaolo Merlini
There have been many developments on rare diseases since the EU Orphan Medicinal Products Regulation came into force in 2000. As the European Commission is evaluating its effectiveness, EHA discussed with Prof.
Tackling Sickle Cell Disease: the need for a European approach
Elvie Ingoli, president of the German association of SCD and thalassemia patients, at the 7th EAPM Presidency Conference in Brussels. Sickle Cell Disease (SCD) is relatively new to many parts of Europe.
Read moreMeet Maria-Victoria Mateos, our April Volunteer of the Month
Maria Victoria Mateos currently heads the Scientific Program Committee of the 24th EHA Congress which will be held on June 13-16 in Amsterdam.
Read moreMeet Maria-Victoria Mateos, our April Volunteer of the Month
Maria Victoria Mateos currently heads the Scientific Program Committee of the 24th EHA Congress which will be held on June 13-16 in Amsterdam.
Read moreHematology in the spotlight at EAPM Presidency Conference
April 9, Brussels - The European Alliance for Personalised Medicine is holding its 7th annual presidency conference at the University Foundation in Brussels, and the event will include a session on Hematology - Personalised treatment and personalised prevention.
Read moreNew data exchange platform on rare diseases
The European Commission (EC) launched a new online knowledge-sharing platform – the European Platform on Rare Disease Registration (EU RD Platform) – on February 28, 2019.
Read more“Who dares wins,” - Elizabeth Macintyre, woman in hematology/EHA volunteer
Elizabeth Macintyre is currently EHA Board Secretary. She got her MD/PhD is Britain, her PhD in France and post-doc in America.
Read moreMeet our Volunteers of the Month: Elizabeth, Francesca and Verena
Yes, you read that right. For this month, we have more than one Volunteer of the Month: Elizabeth Macintyre, Francesca Vinchi and Verena Gaidzik.
Read moreMeet our Volunteers of the Month: Elizabeth, Francesca and Verena
Yes, you read that right. For this month, we have more than one Volunteer of the Month: Elizabeth Macintyre, Francesca Vinchi and Verena Gaidzik.
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