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Patient Advocacy Committee

Current committee members
Derek Elston, United Kingdom (Chair)
Samantha Nier, Switzerland (Vice-chair)
Loris Brunetta, Italy (Vice-chair)
Members representing a Patient Advocacy Organization

Organization
Member

Acute Leukaemia Advocates Network (ALAN)

Samantha Nier

CCI Europe

Anita Kienesberger

CLL Advocates Network (CLLAN)

Pierre Aumont

CML Advocates Network

Jan Geissler

European Federation of Associations of Patients with Haemochromatosis (EFAPH)

Dag…

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EHA-ASH TRTH Joint Oversight Committee

Current committee members
Janis Abkowitz
David Bodine
Chiara Bonini
Ruud Delwel
Mary Dinauer
Terry Fry
Jessica Okosun
Kostas Stamatopoulos
AimTo develop, in collaboration with ASH, translational researchers in Europe and beyond by running the TRTH program while maintaining quality of the program elements by choosing and guiding the faculty…

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International CML adherence survey launched

The drivers behind non-adherence, a highly prevalent problem in oral cancer treatments but also in many other diseases like diabetes, are not well understood to date.

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Publications

During 2023 and 2024, the SWG on Pediatric Hematology contributed to the development of the EHA SIOPe Pediatric Extended Syllabus. This syllabus will be the basis for our future activities in the educational space.

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Multi-center acute myeloid leukemia study update, December 2023

A project update from Prof Maria Teresa Voso. We successfully completed the data collection and harmonization phases, and are now in the process of data analysis.

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Would you sell Peripheral Blood derived Stem Cells?

There are many things that are different in the United States of America (USA) and Europe. Some of these differences are in favour of society in the USA and some in Europe.

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5th Focus in Paediatric Haematology-Oncology

The course, which is particularly aimed at specialist trainees in pediatric haemato-oncology, continued the same ethos which inspired the first four courses: the importance of close interactions between the participants and the teaching faculty, a strong emphasis on real cases…

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