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EU Elections and Health Policy
HemAffairs Article #1 – June 2019
2019 will see significant changes within the European institutions.
Data Analysis and Interpretation WG
Responsibilities:
Managing and analyzing data centrally. Planning and implementing the necessary infrastructure and data transfer agreements.
Quality of Life and Symptoms
The goals of the SWG are:
To promote the evaluation of patient-reported outcomes (PROs) in hematology in daily clinical practice and in clinical trials.
Adolescents and young adults (AYA)
Spotlight on AYAAdolescents and young adults (AYA) with hematologic diseases are a unique group with special characteristics and needs. In recent years, the challenges related to the management of AYA (particularly in relation to cancer) have increasingly been recognized.
Read moreIn Memoriam Pieter Van Vlierberghe
We are deeply saddened to announce that Pieter Van Vlierberghe (42) has passed away.
Patient Advocacy Committee
Current committee members
Derek Elston, United Kingdom (Chair)
Samantha Nier, Switzerland (Vice-chair)
Loris Brunetta, Italy (Vice-chair)
Members representing a Patient Advocacy Organization
Organization
Member
Acute Leukaemia Advocates Network (ALAN)
Samantha Nier
CCI Europe
Anita Kienesberger
CLL Advocates Network (CLLAN)
Pierre Aumont
CML Advocates Network
Jan Geissler
European Federation of Associations of Patients with Haemochromatosis (EFAPH)
Dag…
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