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European registry on inherited platelet disorders project, February 2025
A project update from Prof Paolo Gresele. We successfully completed the CRF harmonization phase and are now in the process of finalizing and launching the registry platform.
Read morePROFILE Bootcamp in Entrepreneurial Innovation in Orphan Diseases, October 23-25, 2017, Leuven, Belgium.
Breaking innovations in rare diseases are at the centre of this PROFILE Bootcamp, which brings together junior & senior researchers, clinicians, pharmaceutical industry and policymakers.
Read moreIn Memoriam Jean Claude Brouet
Professor Jean Claude Brouet passed away on December 12, 2022 at the age of 80.
Read moreJosé Carreras Award
José Carreras, who himself underwent a transplant procedure in Seattle, USA, in 1988, was instrumental in setting up the José Carreras Foundation in Barcelona. The Foundation has established a program of scholarships for scientists working in the field.
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