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EHA supports the proposal for a Regulation on the European Health Data Space (EHDS)

On October 20, the European Hematology Association (EHA) joined a group of 35 stakeholders in welcoming the European Commission’s proposal on the European Health Data Space.

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EHA welcomes European Parliament backing for SoHO legislation

EHA welcomes the European Parliament’s backing for SoHO legislation that puts patient safety and supply sustainability first.

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The Clot Thickens

Haemophilia B is a genetic bleeding disorder, affecting approximately 80,000 males worldwide1, caused by an insufficient or dyfunctional blood clotting protein called factor IX (FIX).

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The HARMONY project: learning to work in BIG (DATA) teams

The HARMONY project: learning to work in BIG (DATA) teams

By Anna Kabanova PhD, YoungEHA committee member

On 26 and 27 September 2019 several YoungEHA members, including myself, had the chance to participate in the 4th General Assembly of the HARMONY Alliance…

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EHA-AHA-GBMA Mini Hematology Tutorial

For the first time EHA is collaborating simultaneously with the Armenian Hematology Association (AHA) and Georgian Association For Blood and Bone Marrow Transplantation (GBMTA) in a virtual Mini Hematology Tutorial.

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Advocacy priorities

The European Union works on countless pieces of legislation and policies that affect the health ecosystem. Some are relevant to most medical disciplines, including hematology—such as the legislation on health data or pharmaceuticals.

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European registry on inherited platelet disorders project, February 2025

A project update from Prof Paolo Gresele. We successfully completed the CRF harmonization phase and are now in the process of finalizing and launching the registry platform.

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Tackling Sickle Cell Disease: the need for a European approach

Elvie Ingoli, president of the German association of SCD and thalassemia patients, at the 7th EAPM Presidency Conference in Brussels. Sickle Cell Disease (SCD) is relatively new to many parts of Europe.

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