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Good Governance Committee
Current committee members
Wim Fibbe, Netherlands (Chair)
Laurent Degos, France
Jean-Luc Harousseau, France
Cristina Mecucci, Italy
Helen Papadaki, Greece
Irene Roberts, United Kingdom
Pieter Sonneveld, Netherlands
AimThe Good Governance Committee (GGC) is responsible for guarding EHA’s image, position and performance as a non-profit membership organization for the public…
New data exchange platform on rare diseases
The European Commission (EC) launched a new online knowledge-sharing platform – the European Platform on Rare Disease Registration (EU RD Platform) – on February 28, 2019.
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