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Without access to treatment, can we truly innovate in rare diseases?
Interview with Giampaolo Merlini
There have been many developments on rare diseases since the EU Orphan Medicinal Products Regulation came into force in 2000. As the European Commission is evaluating its effectiveness, EHA discussed with Prof.
EHA Pediatric Course 2019
Dates: April 3-6, 2019
Location: Hotel Riviera, Sorrento, Italy
Pediatric Hemato-Oncology is a very specialized branch of hematology.
Young researchers to benefit from EHA training and mentoring
Participation in EHA-CRTH will allow these researchers to fine-tune the skills and knowledge required to successfully design, run and complete clinical trials.
Read morePreanalytical WG
Responsibilities:
Reviewing SOPs for sample handling and storage to ensure uniformity across the consortium. Overseeing the logistics of sample collection. Defining the minimum (core markers) and extended panels for immunophenotyping. Establishing good practice sampling for retrospective analysis.
Brussels Declaration on the Recognition of Professional QualificationsThe future of the Harmonisation of the Haematology Curriculum in Europe
On the occasion of the meeting, there was unanimous support for the
“Brussels Declaration on the Recognition of Professional Qualifications” that follows:
The mobility of haematology trainees is of the utmost importance.
Position of EHA on Clinical Trials
The challenge
In Europe, the number of clinical trials is steadily decreasing. From 2007 to 2010, their number has decreased by some 20 percent from 5,028 to 4,193.
Meet Achille Iolascon, our Volunteer of the Month
Can you tell us what you do for EHA and when you started?
I serve the EHA as chairman of the Study working group on “Red cells and iron” since June 2014.
Meet Achille Iolascon, our Volunteer of the Month
Can you tell us what you do for EHA and when you started?
I serve the EHA as chairman of the Study working group on “Red cells and iron” since June 2014.
Patient Advocacy Committee
Current committee members
Derek Elston, United Kingdom (Chair)
Samantha Nier, Switzerland (Vice-chair)
Loris Brunetta, Italy (Vice-chair)
Members representing a Patient Advocacy Organization
Organization
Member
Acute Leukaemia Advocates Network (ALAN)
Samantha Nier
CCI Europe
Anita Kienesberger
CLL Advocates Network (CLLAN)
Pierre Aumont
CML Advocates Network
Jan Geissler
European Federation of Associations of Patients with Haemochromatosis (EFAPH)
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