SWG Educational Activities

Brief overview of an Education Curriculum on Thalassemia that Dr Cappellini and Prof Ali Taher are currently working on with EHA.

Prof. Ali Taher and Prof. Maria Domenica Cappellini, in collaboration with the European Hematology Association (EHA) and Infill Healthcare Communication are currently working to establish a thalassemia course/curriculum. This curriculum will consist of 4 modules and will cover a wide range of topics from Epidemiology of thalassemia, to molecular biology and genetics to morbidities in transfusion dependent and non-transfusion dependent thalassemia, to principles of transfusion and iron chelation therapy, and finally new treatment modalities in thalassemia. Interactive power point slide kits will be created to cover all these topics and will be made available on the EHA website and accessible to all the scientific community. This curriculum will also be accredited by EBAH. Participants may choose to watch their preferred module or cover them all. We are currently working on our first module which will be launched soon. We look forward to the successful completion of this project.

The SWG meets once a year, at the EHA Annual Congress. During the 23rd congress of EHA in Stockholm in 2018 the SWG had a meeting to discuss affairs and research projects, and a scientific session.

SWG Session in the 23rd EHA Congress:

Chair: Achille Iolascon (Naples, I)

  • Van Wijk: New measure for RBCs deformability
  • Carlomagno: Iron deposits and erythropoiesis
  • Garcon: Stomotocytosis new treatment

Quick update on current studies:

  • Russo: Update on the registries of rare anemia
  • Roy: NGS and rare anemias
  • Mañú Pereira: State of art of EuroBloodNet

Anemia

Chair: D. Rees, King's College Hospital, London, United Kingdom

  • Van Wijk: Metabolic defects of the red blood cell
  • Gallagher: Genetics and genomics of erythrocyte membrane defects
  • Girelli: Anemia in the elderly

Iron & disease

Chair: C. Camaschella, San Raffaele Scientific Institute, Milan, Italy

  • Lill: Iron-sulfur protein biogenesis in health and disease
  • Fleming: Congenital sideroblastic anemia: Iron and heme lost in mitochondrial translation
  • Prentice: Potential perils of iron supplementation in low income countries

Heme metabolism defects

Chair: A. Iolascon, University of Naples

  • Tolosano: FLVCR1-mediated heme export and heme metabolism
  • J. Chen: HRI and heme metabolism
  • Sardh: Update on porphyries

These sessions were attended by a large group of participants and they are very well considered.