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Patient Advocacy Committee
Current committee members
Derek Elston, United Kingdom (Chair)
Samantha Nier (Switzerland) (Vice-chair)
Members representing a Patient Advocacy Organization
Organization
Member
Acute Leukaemia Advocates Network (ALAN)
Samantha Nier
CCI Europe
Anita Kienesberger
CLL Advocates Network (CLLAN)
Pierre Aumont
CML Advocates Network
Jan Geissler
European Federation of Associations of Patients with Haemochromatosis (EFAPH)
Dag Erling Stavik
European Haemophilia…
EHA-SWG on AAA a virtual meeting with a worldwide approach covering all aspects of the disease!
Live days: April 29-30, 2021
Content available: April 22, 2021 – May 29, 2021
Chair: Prof Dr C Dufour
Junior and senior hematologists from all over the world gathered on April 29-30, 2021 for the live days of the EHA-SWG Scientific Meeting on…
Press Release: “Building the knowledge economy in the world of blood diseases: patients, professionals and Parliamentarians help make the new Europe.”
Brussels, 29th August 2011
On the 30th & 31st of August a conference will be hosted in the European Parliament that will demonstrate the leading role haematology will have in securing the future knowledge economy envisaged in the Europe 2020 Strategy.…
EHA response to the EU’s Pharma Revision
Last week, the European Affairs team finalised EHA's response to the proposed revision of the EU (European Union) Pharmaceutical Legislation. In April 2023, the European Commission published a proposed Directive and Regulation to replace the current, outdated legal framework.
Read moreThe European Hematology Association (EHA) Announces a New Era of Partnership with Interplan as its New Core PCO
The European Hematology Association (EHA) is delighted to announce to the conference and meeting community the outcome of its Core PCO Invitation To Tender (ITT).
Read moreHighlights of Past EHA (HOPE) Middle East and North Africa (MENA) 2021 - report
The sixth HOPE MENA, with highlights of the EHA Annual Congress, successfully concluded September 23-24. Fully virtual for the second year in a row, the program was compiled together with eight regional partner societies.
Read moreMore than science: the European Affairs program at EHA2023
To develop and administer safe, innovative and effective treatments for patients with blood diseases, hematologists need an effective and enabling regulatory environment.
Read moreExpert opinions for COVID-19 vaccination in patients with non-malignant hematologic diseases
Carlo Dufour, Helen Papadaki, Alan Warren, Colm Bradley, Cristina Mecucci, Jan Palmblad, Cornelia Zeidler, Francesca Fioredda, Sam Salek, Brigitte Schlegelberger and Daniela Guardo, on behalf of the EHA SWG on Granulocytes and Constitutional Marrow Failure Disorders; Carlo L.
Read moreNew data exchange platform on rare diseases
The European Commission (EC) launched a new online knowledge-sharing platform – the European Platform on Rare Disease Registration (EU RD Platform) – on February 28, 2019.
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