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Writing and Publications WG

Responsibilities:
Authoring project and consensus papers.

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Data Analysis and Interpretation WG

Responsibilities:
Managing and analyzing data centrally. Planning and implementing the necessary infrastructure and data transfer agreements.

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Clinical WG

Responsibilities:
Identifying the clinical data required for collection. Locating clinical trials where suitable samples will be collected or have already been collected. Involvement in the European Registry. Assessing the type of database and dataset currently available.

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