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Patient Advocacy Committee
Current committee members
Derek Elston, United Kingdom (Chair)
Samantha Nier (Switzerland) (Vice-chair)
Members representing a Patient Advocacy Organization
Organization
Member
Acute Leukaemia Advocates Network (ALAN)
Samantha Nier
CCI Europe
Anita Kienesberger
CLL Advocates Network (CLLAN)
Pierre Aumont
CML Advocates Network
Jan Geissler
European Federation of Associations of Patients with Haemochromatosis (EFAPH)
Dag Erling Stavik
European Haemophilia…
Program
Saturday, June 15, 2024 - Presidential Session I
Conducting multinational RCTs in pregnancy to improve maternal health in thrombosis: it CAN be done
Prof. Saskia Middeldorp, The Netherlands
Targeting the epigenome in lymphoma
Prof.
Patient organizations
EHA greatly values the collaboration with patient organizations in a growing number of areas, from joint advocacy and a strong presence at the EHA Annual Congress – with a prominent place for the EHA-Patient Joint Symposium on policy and regulatory…
Read moreEHA Taskforce on Diversity, Equity, and Inclusion
The taskforce on Diversity, Equity, and Inclusion has a mandate from the EHA Board to develop a policy on Diversity, Equity, and Inclusion that will be the blueprint for:
Initiating and implementing activities to empower underrepresented groups.
Infections in Hematology
A recent publication in Clinical Infectious Diseases "Global differences in the management of Staphylococcus aureus bacteremia" revealed substantial variation in treatment practices across the world.
Read moreHighlights from the SWG
Impactful activitiesGuideline development projectThe most relevant and impactful activities of the SWG include those related to the guideline development project. There were regular meetings with the Guidelines Expert Panel Committee.
Read moreQuality of Life and Symptoms
The goals of the SWG are:
To promote the evaluation of patient-reported outcomes (PROs) in hematology in daily clinical practice and in clinical trials.
SWG Educational Activities
Past EHA (HOPE) Asia 2021 meeting 10-11 September 2021, Virutal
Speakers
Laane - Systematic review of literature on multiple myeloma EHA evidence-based “Guidelines for the use of patient-reported outcomes in adult patients with hematological malignancies” in progress - Systematic review of literature…
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