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New GFI1B variants in bleeding and platelet disorders
Platelets restrict blood loss upon vessel damage by formation of a clot (thrombus). Recently, we reported a family with a bleeding and platelet disorder (BPD), which was caused by a defect in the gene GFI1B1.
Read moreEHA Guidelines on Recommendations for Pregnancy in Rare Inherited Anemias
EHA and the Scientific Working Group on Red Cells and Iron organized the first online workshop on the EHA Guidelines: “Recommendations for Pregnancy in Rare Inherited Anemias”.
Read moreHow can I start contributing?
Getting started is easy! Here are a few good-to-know tips, that will help you navigate the different aspects of the EHA Hub.
Read morePatient Advocacy Committee
Current committee members
Derek Elston, United Kingdom (Chair)
Samantha Nier, Switzerland (Vice-chair)
Loris Brunetta, Italy (Vice-chair)
Members representing a Patient Advocacy Organization
Organization
Member
Acute Leukaemia Advocates Network (ALAN)
Samantha Nier
CCI Europe
Anita Kienesberger
CLL Advocates Network (CLLAN)
Pierre Aumont
CML Advocates Network
Jan Geissler
European Federation of Associations of Patients with Haemochromatosis (EFAPH)
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