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Patient Advocacy Committee
Current committee members
Derek Elston, United Kingdom (Chair)
Samantha Nier, Switzerland (Vice-chair)
Loris Brunetta, Italy (Vice-chair)
Members representing a Patient Advocacy Organization
Organization
Member
Acute Leukaemia Advocates Network (ALAN)
Samantha Nier
CCI Europe
Anita Kienesberger
CLL Advocates Network (CLLAN)
Pierre Aumont
CML Advocates Network
Jan Geissler
European Federation of Associations of Patients with Haemochromatosis (EFAPH)
Dag…
EHA-SWG Diagnosis Teaser Meeting
On February 17 the 'teaser' meeting "Join the conversation on integrated diagnosis" with Prof MC Béne and key opinion experts took place virtually. Missed the live teaser? No worries, you can still watch the recording until March 17, 2022.
Read moreEuropean Research Initiative on CLL (ERIC)
ERIC is devoted to improving the outcome of patients with Chronic Lymphocytic Leukemia (CLL) and related diseases. The objectives of ERIC are to promote:
Research in all aspects of chronic lymphocytic leukemia and related diseases.
Health Technology Assessment (HTA)
Every European citizen should have access to the best quality medical care at the best possible price. Pan-European cooperation on health technology assessments (HTA) is essential for such aspirations.
Read moreAcute Lymphocytic Leukemia: impressive results with the monoclonal antibody blinatumomab
The Phase 2 dose-ranging study MT103-206 evaluated the efficacy, safety and tolerability of blinatumomab in adult patients with B-precursor Acute Lymphoblastic Leukemia who had relapsed following treatment with standard front-line chemotherapy or allogeneic stem cell transplant.
Read moreEHA Innovation Grant
The call for applications will close on January 14, 2025, at 15:00 (CET).
Read moreHighlights of the SWG
SWG business meetingWe held a key strategic SWG business meeting on November 29, 2023, at the EHA offices in The Hague. During the meeting, we discussed the future plans and priorities of our SWG.
Read moreCan Eltrombopag help children with ITP say goodbye to bleeding?
Immune thrombocytopenia (ITP) is a rare disease in children, affecting 5 in 100,000. Most children get better quickly without intervention but up to 30% will still have disease at 12 months.
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